Living this long with diabetes, you develop a personal relationship with the technology you depend on to keep you alive. That is why I still have every insulin pump I’ve ever used. Each one tells a story of where I was in my life with diabetes and I won’t let myself throw them out.
This past weekend was Mothers day. A common topic in the online community that I love to read is children living with type 1 reaching an age where they look back and realize, with deep gratitude, all their parents and supports did. I love to work with parents of children with type 1 and explain that one day their children will understand and thank them in a fully overwhelming way.
I’ve been living with 1 diabetes for almost 18 years. All of those years had challenges and successes. As you all know, living with diabetes forces you to be independent way beyond your years. You can’t just go and eat, school is not just about classes it’s about balance, and you are always watching numbers. The NUMBERS. For you, for your parents, for your doctors. Always watching, and always knowing I CAN do this.
Those of us residing in the Northeastern United States continue to hide away under blankets, waiting for a sign that spring is just around the corner. And there is one spring staple that Mother Nature can’t take away – the start of baseball.
One day in and March Madness has ensued, already proving why it is one of the best sports events of the year. Filling out the bracket. Pulling for the underdog. Buzzer beaters. The nearly 10 years of a spotless record against my dear husband. I love it all.
Glamour, glitz, great people watching and learning a little bit about all of the movies I wish I had seen over the past year. That’s what I look forward to on Oscar night. And Sunday night was no disappointment. But I was struck by something while listening to the acceptance speeches for Best Actress and Best Actor that should not be lost on us all. The Oscars shined a light on disease and the power of individual patient stories.
The same principles I applied to prepare for my vacation apply to organizations seeking to advance priorities and to make an impact. At HCM, we have helped organizations understand their landscape, recognize gaps that present opportunities for engagement, and determine the most effective tools and strategies to employ to advance their goals.
There were more than a few memorable and important achievements for patients during the FDA virtual meeting with the diabetes community this week. More than 1,000 people registered to watch and listen. More than 7,000 people filled out an online survey to tell the FDA how diabetes impacts their daily lives and what they want to see in new drugs and devices.