A patient with diabetes can expect many things, including the unexpected. But perhaps patients should begin to start expecting more from their providers, from the drug industry, from insurance companies, from the government, and from their own community.
Today is your day. World Diabetes Day. Today the world will talk about you. They should be talking: nearly 86 million Americans have pre diabetes, and over 75 million of them don’t know it. Nearly 30 million American’s have diabetes, and of those 8 million aren’t aware. It is clear, Diabetes, you don’t discriminate which bodies you show up in. So across all continents, all borders and all populations, people are talking.
Great ideas can go awry simply because preferences and input were not considered. It is true when planning a party and it is also true when designing a clinical trial or when reviewing drugs and devices. The patient community recognized that this critical ingredient was missing in the regulatory review process at FDA and worked with Congress to address it.
It seems unbelievable, but tomorrow marks the tenth anniversary of Hurricane Katrina. Arriving in New Orleans this week, the memories came flooding back. The Weather Channel picture of a mammoth storm. Survivors’ joy turned to horror over learning that the levees were overtopping and that some would not hold. The faces of death, destruction and despair.
Not too long ago, it was cherry blossom season in Washington D.C., and I had several family members visit me. My family is still based in the Midwest, and so in some ways, we live in different worlds- size of living spaces, modes of transportation, etc. But we all have one thing in common: when we need something, we shop at Target.
College affordability is an issue that weighs heavily on many people’s minds. And it should. There was a recent story about a public official who was concerned about college affordability. He said he could relate to students who struggle to pay for college because less than 10 years after leaving graduate school, he was still paying off debt for both his undergraduate and graduate degrees. From Harvard.
Diabetes already makes me think about my food in a completely different way than the average person. I don’t see a grilled cheese, I see 30 grams of carbohydrates. I don’t see an apple, I see 15 grams of carbohydrates. I don’t see a Starbucks Frappuccino, I see a bazillion carbohydrates.
I don’t have diabetes. No one in my immediate family has diabetes. What could I possibly write that can reach the bar my colleagues and others in the diabetes community have set? I thought about asking one of my colleagues to take my slot and write another great blog that tied to their personal connection.
Living this long with diabetes, you develop a personal relationship with the technology you depend on to keep you alive. That is why I still have every insulin pump I’ve ever used. Each one tells a story of where I was in my life with diabetes and I won’t let myself throw them out.
This past weekend was Mothers day. A common topic in the online community that I love to read is children living with type 1 reaching an age where they look back and realize, with deep gratitude, all their parents and supports did. I love to work with parents of children with type 1 and explain that one day their children will understand and thank them in a fully overwhelming way.